Lorenzos Oil tells the story of caregivers who pursue experimental therapies for a child with a rare disorder.  The film highlights gaps in research, the role of families in driving innovation and the ethical complexity of unproven treatments.  It raises questions about evidence, hope and the partnership between clinicians and patient advocates.

Lorenzos Oil illustrates how families can catalyze research and the ethical tensions that follow.  Biographical film on rare disease advocacy, experimental therapy and clinician family collaboration.  Use the film to discuss rare disease research, patient led advocacy and clinician collaboration with families.

Main Points: Lorenzos Oil | Patient advocacy | Rare disease research | Experimental therapy | Clinician family partnership | Ethical tension

Quick Facts: Based on a true story | Highlights family driven research efforts | Raises evidence and hope related ethical questions | Shows clinician family collaboration | Stimulated rare disease awareness

Topics related to Lorenzos Oil include patient advocacy | rare disease | research